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Let’s Talk about Sex and Cancer

 

How common are problems with sex after cancer?

• As many as 90% of patients report problems with sexual intimacy following cancer treatment, which means that this is a very prevalent problem for cancer survivors and an important subject to be talking about.

• 52% of survivors report problems with body image following treatment. This can be a result of treatment as well as a result of how people relate to their bodies after finding out that they had cancer.

• Changes in sexual intimacy can have a distressing impact on a survivor’s quality of life because sexual intimacy is an important part of a healthy and connected life.

(AVERY, NISHIMOTO, 2014; BOBER & VARELA, 2012; ROTH, CARTER & NELSON, 2010)


What makes it hard to get help?

• Sex is often a difficult topic for patients and sometimes physicians to discuss.

• Fear of rejection by a partner means that people often distance themselves and stop sharing their own thoughts and feeling about sex during and/or after treatment, which can lead to feelings of isolation and insecurity.

• Sometimes the patient/partner wants to protect their signifiant other so they avoid discussions, which leads to a breakdown in connection and communication.


The Biological Impact

of Cancer on Sexual Intimacy

How cancer changes sex

• Chemotherapy and radiation are associated with skin changes and fatigue

• Chemotherapy causes nausea, vomiting, diarrhea and hair loss, which impact feelings of attractiveness

• Medications used for treatment side effects (i.e. nausea, pain, depression, anxiety) can impact desireandability to achieve orgasm

• Surgical interventions (i.e. mastectomy, removal of reproductive organs/genitalia) can impact body image as well as physical sensitivities due to nerve damage

• Surgical removal of reproductive organs and genitalia can lead to pain, discomfort and/or a lack of sensation

• Radiation to a woman’s pelvis can result in inflammation, narrowing and/or loss of flexibility of the vaginal opening resulting in pain and discomfort( vaginal stenosis)

• Pelvic radiation can all lead to diarrhea and rectal bleeding

• Hormonal deprivation due to surgery or medication can induce menopause resulting in vaginal dryness, decrease in sexual satisfaction and loss of interest in sex

• Placement of an ostomy for urine or stool can require management during sexual activity and can impact body image

(ROTH, CARTER & NELSON, 2010)


The Psychological Impact

of Cancer on Sexual Intimacy




How cancer changes our psychology related to sex

  • Psychological factors can impact motivation for and enjoyment of sexual intimacy

  • Depression

  • Anxiety

  • Poor Coping

  • Decreased Self-Esteem

  • Changes in Body Image


The Relational Impact

of Cancer on Sexual Intimacy


Talking about sex can be hard

  • Doctors often wait for patients to address sexual problems

  • Patients wait for doctors to ask about sexual problems

  • Couples often lack the language to discuss sex


Other relationship factors to consider

  • Illness is often not an aphrodisiac

  • Being in a long-term relationship, aging and childbearing are also often not aphrodisiacs

  • Couples often cope with stressors differently

  • Sometimes relationships become more focused on caretaker/patient than on erotic feelings

  • Suffering can have different meaning for each person


The Sexual Response Cycle


The phases of the response style

  • Desire - motivation to engage in sexual behavior

  • Arousal - physical changes that increase motivation for sex

  • Plateau - intensification of physical arousal

  • Orgasm - a sudden and forceful release of sexual tension

  • Resolution - the body returns to baseline

(KATZ, 2009)


Why women instigate or agree to sex

  • To express love

  • To receive and share physical pleasure

  • To feel emotional closeness

  • To please her partner

  • To increase her own well-being

(KATZ, 2009)


Where does a woman’s sexual desire come from?

  • The reasons for having sex combine with physical and emotional factors resulting in sexual arousal.

  • Continued stimulation then allows the excitement and pleasure to build and finally leads to a desire to have sex.

  • Openness to one’s partner + sexual stimulation = sexual pleasure and desire for sex

  • Willingness comes from the experience of sexual satisfaction and non-sexual rewards


What is arousal?

  • Muscle tension increases

  • Heart rate quickens and breathing is accelerated

  • Skin may become flushed (blotches of redness appear on the chest and back)

  • Nipples become hardened or erect

  • Blood flow to the genitals increases, resulting in swelling of the woman's clitoris and labia minora (inner lips)

  • Vaginal lubrication begins

  • The woman's breasts become fuller and the vaginal walls begin to swell.


The sexual plateau

  • The changes that beganin phase 1 are intensified.

  • The vagina continues to swell from increased blood flow, and the vaginal walls turn a dark purple.

  • The woman's clitoris becomes highly sensitive (may even be painful to touch) and retracts under the clitoral hood to avoid direct stimulation from the penis.

  • Breathing, heart rate, and blood pressure continue to increase

  • Muscle spasms may begin in the feet, face, and hands

  • Muscle tension increases



Orgasm! What actually happens?

  • Involuntary muscle contractions begin

  • Blood pressure, heart rate, and breathing are at their highest rates, with a rapid intake of oxygen

  • Muscles in the feet spasm

  • There is a sudden, forceful release of sexual tension

  • In women, the muscles of the vagina contract. The uterus also undergoes rhythmic contractions

  • A rash, or "sex flush" may appear over the entire body


The sexual resolution

  • Body slowly returns to its normal level of functioning

  • Swollen body parts return to their previous size and color

  • Marked by a general sense of well-being, enhanced intimacy

  • Some women are capable of a rapid return to the orgasm phase with further sexual stimulation and may experience multiple orgasms

Here are some helpful links if you would like to do more reading on the sexual response cycle:

https://www.self.com/story/female-sexual-response-cycle

https://sexinfo.soc.ucsb.edu/article/sexual-response-cycle


Getting Back on the Path to Sexual Intimacy

Addressing changes in body image

  • Body image changes are a common first challenge that patients may need to overcome.

  • Helpful outlets and interventions include:

    • Beauty focused programs such as Look Good, Feel Better

    • Consider boudoir photos ( for a great example visit Jenn Spain Photography on Instagram)

    • Look at Body Positivity classes and exercises to help you focus on what is good about your body (click here for a helpful article on body positivity)

    • Support groups or one-on-one discussions to connect to other survivors and share practical tips such as ways to address ostomy bags

    • Psychotherapy to address losses and changes in self-image

    • Consider decorative tattoos to enhance or cover scars or surgical sites such as breasts


Treating vaginal dryness


Addressing changes in vaginal health

Prescription creams for improving vaginal tissues

  • Vaginal DHEA (Intrarosa; by prescription)

  • Vaginal estrogen (by prescription)

  • Pelvic floor exercises (Kegels)


Overcoming pain during intercourse

  • Pain can be related to vaginal dryness

    • Use a lubricant and/or moisturizer (see links above)

  • Vaginal dilators can be used to improve elasticity and to break down scar tissue

    • visit SoulSource for information about vaginal dilation for scaring or stenosis

    • Receiving education from a nurse or medical professional increases success with dilation

  • Adding pelvic floor exercises (Kegels) may improve results of vaginal dilation (see above for tools and instructions)

  • There are physical therapists that specialize in vaginal rehabilitation so ask your healthcare team for referrals.

  • More stimulation before sexual intercourse can also help


Sex is more than intercourse

  • Oral sex

  • '“Outersex” - when a person puts a lube on their upper thighs and the penis is inserted between the thighs for stimulation

  • Anal sex

  • Manual stimulation - touching with hands

  • Sensual touching - massage

  • Masturbation


Some other strategies to try

  • Relaxation exercises before sex can decrease pain and increase arousal response

  • Masturbation is a way to reconnect with yourself sexually before involving your partner

  • Using sex toys to explore your own sexuality (Amazon, Pleasure Chest)

  • Try something new as a way to simply create movement

  • Know that making changes often leads to feelings of anxiety, which is a sign of growth

  • Intimacy and growth are both life affirming experiences

  • Eat and sleep well


Addressing Sex as a Couple’s Challenge

How to talk to your partner about sex

  • Communication is a key to resuming a healthy sex life after cancer

  • Focusing on connecting and touching rather than orgasm or intercourse can take the pressure off of both of you

  • Try to focus on “I” statements and share your feelings

  • Don’t try to read your partner’s mind and avoid blame


Considering couple’s therapy

  • Facing a life-threatening illness can have an important impact on communication related to sexual intimacy

  • Therapy provides a place to acknowledge and process losses that have come with cancer

  • If challenges focus on communication then traditional couple’s therapy would likely be the best first step

  • If the issues are primarily focused on changes in sexual intimacy then sex therapy is likely a better first step

  • If the root of the problem is unclear then seeking sex therapy is like to be helpful


What is sex therapy?

  • Sex therapy will focus on:

    • Communication around sex

    • Sexual positions to enhance intimacy while reducing discomfort

    • Ways to improve intimacy that are not focused solely on sexual intercourse


Restoring intimacy with sensate focused therapy

  • Goal is to build trust and intimacy within your relationship, helping you to give and receive pleasure

  • Each member of the couple takes turn being the giver and receiver of pleasurable touch

  • Occurs in phases:

    • Phase 1: Non-Genital Sensate Focus

    • Phase 2: Genital Sensate Focus

    • Phase 3: Penetrative Sensate Focus


Sample sensate exercise: the hand rub

  • Set a timer for 15 minutes

  • One partner should give the other partner a hand massage.

  • The partner giving the massage should focus on the experience of giving pleasure.

  • The receiver of the message should focus on receiving pleasure and providing feedback about what feels good.

  • After 15 minutes, switch roles


Sample sensate exercise: the gazing exercise

  • Set a timer for 5 minutes

  • Face each other and have a conversation

  • Focus on maintaining eye contact

  • Try to ask on another about your individual days

  • Keep the focus on each of you as individuals and as a couple